Friday, September 30, 2011

ALS "AMERICA'S BEST KEPT SECRET" AND THE "OFTEN AWESOME ARMY"

The earth shook on the East coast of the USA, hurricane Irene loomed & there was a big buzz around the world about a major breakthrough for ALS http://www.feinberg.northwestern.edu/news/2011E-August/ALS_Breakthrough.html?sf2041063=1  How ironic that all this would be happening whilst Tim LaFollette slipped away losing  his battle with ALS and passed from this world. Tim's mother tragically lost her life to ALS when he was just Two years old as if this was not tragic enough in May 2009 at the young age of 30 Tim was also given a diagnosis of ALS & the "ROAR" began, Tim was going to make sure he educated the entire world about his battle with ALS by way of the "Often Awesome" series http://oftenawesome.org/ .  This is an amazing insight into the life of  a patient with ALS and what is brought to the table, the battle, caregivers, devastation, high moments, low moments and everything in between, not to be ignored, this documentary is brilliant, soul searching and "REAL"  a must see. Tim you will always be remembered by myself and  many others across the world, a cure for you did not happen in your time , but through your insightfulness and willingness to share your battle with the world perhaps there will one day be a cure.

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