"ALS DISEASE UNDERGROUND"

I am an EX caregiver for my husband who had the "NO CURE" disease ALS aka Lou Gehrig's MND disease. I was not a nurse or medically educated, I was thrown into this role because of ALS & I had to learn fast. I am a writer of nothing's unless you care or want to know or be informed about ALS, HOWEVER I DON'T SUGAR COAT SUBJECT'S as ALS is far from sweet. There are also many informative Blogs and helpful links, self knowledge is power, Thank You for visiting.

Monday, February 25, 2013

The ALS Association Urges U.S. Food and Drug Administration to Expedite Drug Development and Approval Process at First-Ever ALS-Specific Public Hearing

The ALS Association Urges U.S. Food and Drug Administration to Expedite Drug Development and Approval Process at First-Ever ALS-Specific Public Hearing


Posted by Unknown at 2:51 PM No comments:
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Labels: ALS ASSOC, Expedite Drug Development, FDA

Sunday, February 17, 2013

TOTO fans for ALS and Mike Porcaro

BLESS YOU MIKE PORCARO, I DO NOT KNOW YOU PERSONALLY BUT I KNOW YOUR PERSONAL BATTLE WITH ALS AND ALSO THE BATTLE YOUR LOVED ONE'S WHO SUPPORT YOU HAVE MAY WE SOON HAVE A CURE !!!!!!!!!!!!!!

Posted by Unknown at 10:35 PM No comments:
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Labels: Battle with ALS, MIKE PORCARO, MUSICIAN ALS, TOTO, ToTo BASS PLAYER HAS ALS DISEASE
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My Blog List

  • ALS Assistive Technology
    Brainternet: one step closer to mind controlling the internet - DANIEL SANCHEZ SEPTEMBER 26, 2017 A team of South African scientists have managed to hook up a human brain to the internet in real time for the first time...
    7 years ago
  • My Brother Andrew
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    10 years ago
  • Living with ALS by Tom Swift
    A Few Words In Closing - ***One of Tom's final wishes before his death was to write one more article for the Asheville Citizen-Times, and to edit a version of it for the St. James...
    12 years ago
  • ALS Everyday Living
    Fals Clinical Trial opportunity -
    13 years ago
  • My journey with PLS
    - I decided to write this blog after my recent diagnosis of Primary Lateral sclerosis. As it is a rare condition, it is difficult to find personal accounts o...
    15 years ago

Eric Lowen

Eric Lowen brilliant composer & Musician of the duo Lowen & Navarro who wrote "we belong" yes, the song Pat Benatar became famous for has been battling ALS. His song Learning to fall is another musical gem, written & sung to explain his emotions about having ALS.
ERIC LOST HIS BATTLE WITH ALS march 23rd 2012, rest in peace Eric, you are now free to fly & soar like an Eagle .......................


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      • The ALS Association Urges U.S. Food and Drug Admin...
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