"ALS DISEASE UNDERGROUND"

I am an EX caregiver for my husband who had the "NO CURE" disease ALS aka Lou Gehrig's MND disease. I was not a nurse or medically educated, I was thrown into this role because of ALS & I had to learn fast. I am a writer of nothing's unless you care or want to know or be informed about ALS, HOWEVER I DON'T SUGAR COAT SUBJECT'S as ALS is far from sweet. There are also many informative Blogs and helpful links, self knowledge is power, Thank You for visiting.

Showing posts with label New Clinical Trial. Show all posts

Showing posts with label New Clinical Trial. Show all posts

Sunday, March 3, 2013

NEW CLINICAL TRIAL !! FOR ALS PATIENTS!! FDA APPROVAL !! READ ON...

http://www.als.net/TDI-132?utm_source=contactology&utm_medium=email&utm_campaign=FDAApprovesNewClinicalTrialinALSPatients

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Labels: ALS, for ALS Patients, New Clinical Trial, TD1-132

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BLOGS & WEBSITES I FOLLOW

My Blog List

ALS Assistive Technology

Brainternet: one step closer to mind controlling the internet - DANIEL SANCHEZ SEPTEMBER 26, 2017 A team of South African scientists have managed to hook up a human brain to the internet in real time for the first time...
8 years ago
My Brother Andrew

Our family`s MND Ice bucket Challenge in Memory of Andrew - We have completed The MND Ice Bucket Challenge !! Please donate by Text to ICED55 [any amount to] 70070 - every little bit helps ! Or to ...
12 years ago
Living with ALS by Tom Swift

A Few Words In Closing - ***One of Tom's final wishes before his death was to write one more article for the Asheville Citizen-Times, and to edit a version of it for the St. James...
13 years ago
ALS Everyday Living

Fals Clinical Trial opportunity -
14 years ago
My journey with PLS

- I decided to write this blog after my recent diagnosis of Primary Lateral sclerosis. As it is a rare condition, it is difficult to find personal accounts o...
16 years ago

Eric Lowen

Eric Lowen brilliant composer & Musician of the duo Lowen & Navarro who wrote "we belong" yes, the song Pat Benatar became famous for has been battling ALS. His song Learning to fall is another musical gem, written & sung to explain his emotions about having ALS.

ERIC LOST HIS BATTLE WITH ALS march 23rd 2012, rest in peace Eric, you are now free to fly & soar like an Eagle .......................

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"ANNOUNCEMENT"

"ONE SOMETIME'S HAS TO BARE THEIR SOUL IN ORDER TO PROGRESS".

HELPFUL LINKS

ALS ANGELS
ALS CARE
ALS EQUIPMENT NEEDS
ALS FORUM
ALS NATIONAL REGISTRY
ALSTDI
Better life mobility
For caregivers of ALS
Informative Link For Disability Technology
MND/ALS NEWS/MAGAZINE
OFTEN AWESOME DOCUMENTARY

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  - CLICK for Louis "because you can"!!

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