Saturday, March 26, 2011

USS TRUXTUN CGN-35 did you serve on this ship?

Did you serve in the USN on the USS Truxtun CGN-35 the late 70's to the early 80's ? my husband did and he has ALS, this disease is also called Lou Gehrig's, drop us a line & thank you for your service. N.B: http://www.truxtunassn.org/Events.html we hope to go to this !


Sailor's Creed

I am a United States sailor.

I will support and defend the Constitution of the United States of America and I will obey the orders of the officers appointed over me.

I represent the fighting spirit of the Navy and those who have gone before me to defend freedom and democracy around the world.

I proudly serve my country's Navy combat team with honor, courage, and committment.

I am committed to excellence and the fair treatment of all.

Sleep Lab For Bipap

This past wednesday March 23rd Don went to DHMC for a sleep study to find out what kind of Bipap breathing aid would be best for his breathing issues. Don arrived about 7pm and by 9pm he was fitted with all the necessary wires and gadgets ( they had also threatened to shave his goatee off which he has had for years ) after a while they put a mask on him and he found this very uncomfortable, he felt like he was being affixiated so they had to remove the mask. he ended up with about two hours sleep but it was enough to figure out what his breathing issues are ( I hope). Don was told in the morning that they would see him and address the Bipap issue at his next ALS clinic, however the hospital has since called & informed him that he has a date for his feeding tube proceedure April the 25th,  not sure now what will happen, either the Bipap will come first or the feeding Tube surgery, either way something has to be done about both.

Wednesday, March 16, 2011

Often Awesome The Series - Episode 28: Prisoner Inside

I have been following Tim on his journey, he is a remarkable young man, I admire his stella strength & have watched his story unfold through time, people need to watch his films from the begining to understand Tim & what he has been through.

Tuesday, March 15, 2011

Drop Foot

Dam It!!!! Dam It!!!! Don get's up this morning and his right leg gives out, he almost fell through the wall, looks like this drop foot is going to be a problem faster than we thought, it never ceases to amaze me how ALS trys to take control of Don's body in a different way each day, PUCK ALS !!!

Sunday, March 13, 2011

Fund Raiser Starts Tomorrow

Don's fundraiser has started, big big thank you to his workplace WTG! Hopefully it will raise enough so we can move !!!
FOOTNOTE: I have left the company name out as I do not have permission to use it ahead of time, if I get permission I will post more information.

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