I am an EX caregiver for my husband who had the "NO CURE" disease ALS aka Lou Gehrig's MND disease. I was not a nurse or medically educated, I was thrown into this role because of ALS & I had to learn fast. I am a writer of nothing's unless you care or want to know or be informed about ALS, HOWEVER I DON'T SUGAR COAT SUBJECT'S as ALS is far from sweet. There are also many informative Blogs and helpful links, self knowledge is power, Thank You for visiting.
Thursday, September 6, 2012
Dr makes a breakthrough in ALS battle
Dr brown from umass makes headway in the battle for finding a cure for ALS/MND http://www.umassmed.edu/news/2012/research/brown-on-fox25-about-als-breakthroughs.aspx Could this slow the process of ALS?? one would like to think so, to late for my husband but for many living with ALS daily this sounds promising !!!!
Wednesday, August 8, 2012
Dominic Cumo is one of the youngest people to be diagnosed with ALS ( Amyotrophic lateral sclerosis ) he is just 8 years old. You can read a recent article on Dominic through the posted link, http://www.vvdailypress.com/articles/gehrig-35490-lou-among.html
Dominic singing "never say never"
Tuesday, August 7, 2012
In the fall of 2012 an expedition team will attempt to journey over 200 miles to climb the 48 highest peaks in New Hampshire; in the effort to raise money and awarness for A.L.S. The Expedition will serve as the central platform of an engrossing, informative adventure documentary that uses the challenge of summiting the 48 peaks to teach the public about the true challenges of A.L.S. PLEASE DONATE TO THIS AMAZING EXPEDITION AT THE LINK PROVIDED BELOW!
http://www.expeditionforals.com/
http://www.expeditionforals.com/
Thursday, July 19, 2012
Tuesday, July 10, 2012
I personally was very upset with the line in the TED movie " Hope you get Lou Gehrig's disease", I felt that it squashed & demeaned ALS disease, the ALS community as a whole gets little support, this careless movie line undermined the horrifying affects of ALS and what it does to the patient & their loved ones, my personal feelings are summed up in this recent post READ HERE: http://als-advocacy.blogspot.com/2012/07/dear-seth-macfarlane-you-give-us-way.html
Dominic Is The Youngest Person With ALS
Dominic Cumo is just eight years old, he is a darling child & most folks would say "how can he have ALS"? he is just eight years old, isn't ALS an old persons disease?"?. ALS knows know age, creed, color or religion, it cares not if you are rich or poor, famous of infamous, it strikes like a snake fast and furious. Here is Dominic's recent story: http://www.mydesert.com/article/20120628/NEWS01/206270369
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