I am an EX caregiver for my husband who had the "NO CURE" disease ALS aka Lou Gehrig's MND disease. I was not a nurse or medically educated, I was thrown into this role because of ALS & I had to learn fast. I am a writer of nothing's unless you care or want to know or be informed about ALS, HOWEVER I DON'T SUGAR COAT SUBJECT'S as ALS is far from sweet. There are also many informative Blogs and helpful links, self knowledge is power, Thank You for visiting.
Tuesday, July 10, 2012
I personally was very upset with the line in the TED movie " Hope you get Lou Gehrig's disease", I felt that it squashed & demeaned ALS disease, the ALS community as a whole gets little support, this careless movie line undermined the horrifying affects of ALS and what it does to the patient & their loved ones, my personal feelings are summed up in this recent post READ HERE: http://als-advocacy.blogspot.com/2012/07/dear-seth-macfarlane-you-give-us-way.html
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