I am an EX caregiver for my husband who had the "NO CURE" disease ALS aka Lou Gehrig's MND disease. I was not a nurse or medically educated, I was thrown into this role because of ALS & I had to learn fast. I am a writer of nothing's unless you care or want to know or be informed about ALS, HOWEVER I DON'T SUGAR COAT SUBJECT'S as ALS is far from sweet. There are also many informative Blogs and helpful links, self knowledge is power, Thank You for visiting.
Thursday, July 19, 2012
Tuesday, July 10, 2012
I personally was very upset with the line in the TED movie " Hope you get Lou Gehrig's disease", I felt that it squashed & demeaned ALS disease, the ALS community as a whole gets little support, this careless movie line undermined the horrifying affects of ALS and what it does to the patient & their loved ones, my personal feelings are summed up in this recent post READ HERE: http://als-advocacy.blogspot.com/2012/07/dear-seth-macfarlane-you-give-us-way.html
Dominic Is The Youngest Person With ALS
Dominic Cumo is just eight years old, he is a darling child & most folks would say "how can he have ALS"? he is just eight years old, isn't ALS an old persons disease?"?. ALS knows know age, creed, color or religion, it cares not if you are rich or poor, famous of infamous, it strikes like a snake fast and furious. Here is Dominic's recent story: http://www.mydesert.com/article/20120628/NEWS01/206270369
Subscribe to:
Posts (Atom)