Discovery may lead to new treatment for ALS

Discovery may lead to new treatment for ALS

                                          PHOTO ROTH & JASON

Please join Jason Becker for his birthday celebration July 22nd, watch the video for details.

I personally was very upset with the line in the TED movie " Hope you get Lou Gehrig's disease", I felt that it squashed  & demeaned ALS disease, the ALS community as a whole gets little support, this careless movie line undermined the horrifying affects of ALS and what it does to the patient & their loved ones, my personal feelings are summed up in this recent post READ HERE:  http://als-advocacy.blogspot.com/2012/07/dear-seth-macfarlane-you-give-us-way.html

Dominic Is The Youngest Person With ALS

                                                     
Dominic Cumo is just eight years old, he is a darling child & most folks would say "how can he have ALS"? he is just eight years old, isn't ALS an old persons disease?"?. ALS knows know age, creed, color or religion, it cares not if you are rich or poor, famous of infamous, it strikes like a snake fast and furious. Here is Dominic's recent story: http://www.mydesert.com/article/20120628/NEWS01/206270369

                                                          
                                                               

ALS "AMERICA'S BEST KEPT SECRET" AND THE "OFTEN AWESOME ARMY"

The earth shook on the East coast of the USA, hurricane Irene loomed & there was a big buzz around the world about a major breakthrough for ALS http://www.feinberg.northwestern.edu/news/2011E-August/ALS_Breakthrough.html?sf2041063=1  How ironic that all this would be happening whilst Tim LaFollette slipped away losing  his battle with ALS and passed from this world. Tim's mother tragically lost her life to ALS when he was just Two years old as if this was not tragic enough in May 2009 at the young age of 30 Tim was also given a diagnosis of ALS & the "ROAR" began, Tim was going to make sure he educated the entire world about his battle with ALS by way of the "Often Awesome" series http://oftenawesome.org/ .  This is an amazing insight into the life of  a patient with ALS and what is brought to the table, the battle, caregivers, devastation, high moments, low moments and everything in between, not to be ignored, this documentary is brilliant, soul searching and "REAL"  a must see. Tim you will always be remembered by myself and  many others across the world, a cure for you did not happen in your time , but through your insightfulness and willingness to share your battle with the world perhaps there will one day be a cure.